Surviving
Hodgkin's Disease -
A True Story
There is a
website that anyone suffering with Hodgkin's Disease, or their
family and friends, can visit. In fact, the story presented there
is a true one. A gentleman, who wishes to be known only as Vinny,
has placed his journal online so that it may benefit others. Vinny
has been diagnosed twice with cancer during his life and has yet
to reach his 40th birthday.
The journal
was written to chronicle Vinny's experiences of coping with Hodgkin's
Disease. The journal does not merely cover the clinical, physical
aspects of cancer treatment, but is also a very explicit account
of a cancer sufferer's emotional journey through his diagnosis
and treatment. Vinny tells us how his life is affected; how the
changes he is going through affect his family and place a strain
upon his family and marriage.
Vinny's journal
is written frankly and some people may find the content upsetting.
However, it is a fact of life that writing about cancer from an
outside perspective and actually having to live, cope with and
endure such an illness are two entirely different things. www.thefuneraldirectory.com
has received permission to feature excerpts from the journal here
and also to provide the link to a site that hopefully will help
anyone having to deal with Hodgkin's Disease (or any similar disease).
The journal will inform people of what they may expect to undergo
in terms of treatment; however, it also shows anyone suffering
from such cancer that they are not alone.
The website
address is: www.geocities.com/vinnyp3/cancer.html
Extracts
November 5th,
1998
It has now
been three days since my preliminary diagnosis of lymphoma. This
information was given to me on Monday, November 2nd. My wife was
with me and it felt very strange. I actually had no reaction until
we left the office and she asked me if I was OK, with that I suddenly
was not. I think I may have shed some tears for at least 10 seconds,
then I was OK. We were driving back to work when the second wave
hit me. I was quite angry and wondering why I had to go through
this again, thought lightning didn't strike twice. My wife wanted
me to pull over but I wanted to get to work, had to do something
to start to deal with this. She dropped me off and in I went.
My boss was
the first person I told. It was actually easier then I had thought
and I even made light of it. I stayed at work for a few hours
as I dreaded going home. I just couldn't imagine looking at my
kids with what I knew. I told people as needed during the time
I was there. Eventually I had my wife pick me up, think it was
around 2:00 PM or so. We came home and my mother in law was here
watching the kids. She asked how I was and I said fine, seeing
the kids actually made me feel better. Spent the remainder of
the afternoon trying to get an appointment with the oncologist,
their computers were down. Sometime after 5:00 PM my wife got
an appointment for 4:00 PM on Wednesday, November 4th. The day
dragged and I did virtually nothing for the remainder of the afternoon/evening.
The kids eventually
went to bed and I watched 'Everybody loves Raymond', I managed
to laugh as it was quite funny. Flipped channels after that, think
I watched some Dennis Miller but I don't really know for sure.
My wife seemed to avoid me and I think I remember her coming to
bed after a while and holding me, felt good to be held.
Dark
Times
November 25,
1998
My journal
entries are becoming sporadic and I just don't care. I can't motivate
myself to do anything and I am extremely depressed. My wife doesn't
even talk to me because every time we do we fight. She won't listen
and I'm all alone. I get the distinct impression from her that
if we don't talk about it, she won't have to face it. I've always
been there for everyone and anyone and I never thought that I'd
have to go through this alone. My mother baby-sits when asked
but other than that I never hear from her. Tomorrow we'll be over
there for Thanksgiving and it's going to be miserable.
Last night
I had a complete breakdown and the deep sadness and crying have
completely overwhelmed me. I can't get on track and I can't find
my place. I finally took a sleeping pill so I could get some rest.
I thought about taking the whole bottle but I didn't. Even looking
at my kids doesn't help anymore. I feel like I've gotten nothing
to live for and don't want to fight. I go through the motions
everyday but I have no enjoyment. I can't cope anymore and I fear
that I will have a nervous breakdown and end up in the hospital.
A friend at work is the only person who I can talk to. I've tried
talking to My Wife but she doesn't want to listen. She says she's
there for me and is going to help me through it but she's not
there. My Wife calls me at work every single day, multiple times
per day. Today, not once. I know it's because of the breakdown
last night. As soon as I got home today she went out. I asked
her why she is ignoring me and she says she's not.
I considered
going to church tomorrow but I can't find anything to be thankful
for. I simply wish that it was over, one way or another. Death
is an ever present spirit in my life and I'm way too emotional.
I still can't figure out why I have to do this. I'm just sick
of it. The more I type the worse I feel. Enough is enough, don't
know when my next entry will be, I only hope there will be another
entry.
November 27,
1998
My Wife sent
me a letter today, it is as follows. I did not edit it in any
way, I simply copied it into this document:
'I really
don't know where to start with this letter. I read your journal
and your right about me not knowing how to handle this. I do know
that I love you and I will be there for you no matter what. I
want you to fight this because I know you can. I wish there was
something I could do to change this for you but I cant. I can
only be there for you through your treatment and take care of
you after them. I will do anything you need me to do. If you don't
have these treatments your kids will never know who you are. I
don't think that's how you want things to be for them. I don't
ever want to have to tell them anything bad about their daddy.
They love you and I know if they understood what was happening
they would want you to fight. I know your scared and your not
alone. I cant tell you how many nights I lay in bed and cry thinking
about what you have to go through. I'm trying to be strong for
you and the kids. Our Son just came down and wanted to know why
I was crying. This is why I have to try and be strong. You are
everything to me and without you I wouldn't be able to make it.
Yes id have my kids but that's not enough. I want there daddy
to see them grow up. I think about that more and more. I see how
happy they are when they see you. they love you as much as me.
The other night I told you I loved you twice and you ignored it.
how do you think that makes me feel. I feel like you really don't
know if you love me. I try so hard to make you happy but it never
seems to work. In your journal you wrote about how this might
bring up closer or pull us apart. I feel like I'm being pulled
apart already because you wont talk to me. I have no one to talk
to about this except to myself. No one told me if I needed anything
to let them know they all told you and I'm glad they want to help
you. I get to sit alone with my kids and cry. I get to sit here
and write this and cry. I want you to be you and not be so uptight
with us. You snap at alot. Believe me I understand but I want
you to let us help you and not snap at us.
I notice that
alot of things Our Son does you get mad at. He's going to be all
confused and I don't want that. He cant wait for you to come home
from work. Just remember one thing. I want to be there for you,
hold you when you need to be held. I would stop everything I was
doing to be there for you. Just remember that I Love You and always
will. I hope this does bring us closer than we have ever been.
Well that's it for now because Our Daughter's crying in her crib.
Talk to you later'
This is a
good letter, up until this point I couldn't figure out why My
Wife never had any reaction to this and never talked about it.
I didn't see that she was trying to be strong for me and help
me. The way it looked to me was that she simply ignored it and
led a seemingly normal life while I was falling apart. I partially
resented her for that and talked to a couple of people at work
about it. Her finally voicing her feelings to me was a terrific
turning point in this ordeal. I asked her not to be strong for
me, just to be there for me. I also asked her not to cry alone
but to cry with me. Sometimes a good cry helps. I then asked her
to read all of my journal and to stay up to speed by reading it
on a regular basis. I find that in these entries I write things
I won't/don't say and this can provide her with some insight into
me.
For the full
journal, please visit: www.geocities.com/vinnyp3/cancer.html
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